27 July:

The NG tube has come out today!!! Yeah!!! No more nasal gastric feeds (I hope, just breastfeeds.
On Tuesday (1 Aug.) Noah & I fly to Auckland. This trip is payed for by the research programme he's enrolled in. It's a neuro-cardiac study, to research the effects of heart surgery on babies' brains. For those of you in NZ and saw us on TV3 news back in May: yes, Noah was on the news because of that research.
Anyway, so he's having an MRI on Tuesday, in Starship, stay the night in a motel and then fly back the next day.
When Noah is 2 years old, he'll have another MRI and they will also asses his progress at that stage. There may be a follow-up when he's 5 years old. The research programme is still trying to secure funding for the 5yo follow-up.
So far, Noah's brain development has been fine! That's very reassuring.

So next week is a busy one for us: the paediatrician on Mo. and then up to Auckland on Tuesday.
Will keep you updated as I can!